Great to see Simon Weston CBE in the Senedd, President of DEBRA UK, and learn more about Epidermolysis Bullosa (EB), a group of rare genetic skin conditions.
Although sadly there is currently no cure for this, investment into their medication could change the lives of many children and adults in Wales.
It was harrowing to hear of the pain and suffering many with this condition have to go through, with hours of changing bandages every day, so I hope that the Welsh Government will look further into what they can do to help.
